I am going to conclude where we began. My best advice to you, still resides in three things…well, actually, I'm adding a fourth as I close:
- Learn all you can about your illness and about treatment options that may exist.
- Be an active participant in all decisions about your care.
- Maintain your own medical records, separate from records kept by physicians.
- Never, ever, ever, ever, EVER give up hope.
As always, my personal materials describe only the surface of a deeper pool. If you do not own either of the books below, they are must-haves for members of the face pain community:
Insights: Facts and Stories behind Trigeminal Neuralgia by Joanna M. Zakrzewska, M.D.
Striking Back! The Trigeminal Neuralgia and Face Pain Handbook by George Weigel and Dr. Kenneth F. Casey, M.D.
If you are not involved with TNA, the Facial Pain Association, please check out www.endthepain.org immediately to get connected to this wonderful organization.
Please be sure to sign up to receive my newsletters if you do not already do so. You can register for them on the home page.
This has been the most difficult section of this site to develop, as you can imagine, and I want to add many practical downloads to it. Check back now and then.
It is possible, to live well despite pain. We’re in it together, friend. God Bless.
Judi
